Sunday, October 17, 2010


Joel and I went to a movie a couple nights ago--a movie about a boy and a vampire girl--a kid vampire. I thought it would be twilighty and easy. Wrong! It was dark and scary. Aggghh! I don't like scary movies. But it was more than a vampire spoke of bullying and ostracism and how painful and damaging that can be for a child. I know this has nothing to do with what I generally blog about, but it's worth saying: Bullying kills children. It results in murder, suicide, and immeasurable pain. And home is no longer a safe haven from bullying because of texts, email, facebook, and other social media.
One of the things that I've heard so often is that Maura actively sought to include everyone, especially those who were new or feeling awkward or lonely. Such a simple act and yet, her kindness was important enough that many people have wanted to share it with me.
I hope her kindness is kloned and shared.

I stole this picture from Sheena's website.

Sunday, October 10, 2010


Here's an easy peasy thing you can do every day for the next week or so to promote SARCOMA AWARENESS.
Click on the link below. Ooh and aahh over the cool black Nascar covered in yellow sarcoma ribbons. Then click on the VOTE button in the bottom right-hand corner. Everyday for the next week.No money to pay. No signing up for anything. No SPAM.
This could mean awareness and funding for sarcoma research.
You can vote every day from every computer available :)

Vote everyday and tell your friends to vote, too.

Saturday, October 9, 2010


During Maura's final days, while she lay in a hospital bed at M.D. Anderson, her room filled well past the fire code limit with friends and relatives, the conversation somehow turned to dying and Heaven.
Maura furrowed her brow and expressed her chief concern: "But I'm not going to know anybody there!"
The room erupted in laughter. Leave it to Maura to be more concerned about the social aspects of heaven than the imminent act of dying!

Sunday, October 3, 2010

Book Signing Pic

Joel, me, nancy Brinker, Joni Rodgers, Gary Rodgers

Race Pics


My last post oozed frustration--frustration because few people have heard of sarcoma, because sarcoma is under-funded and under-researched; because almost no FDA-approved drugs exist to fight it; because drug companies don't want to spend money to develop treatments for a life-threatening disease that relatively few people get, but they are willing to spend millions to develop a new cold medicine; because sarcoma kills; because sarcoma kills children and young adults; because sarcoma killed Jillian; because sarcoma killed Maura; because I miss my daughter.

Yesterday, however, I discovered a partial antidote to that frustration: the 5K race/run/walk.

Joel and I signed up for the Susan G. Komen Race for the Cure...just the walking big deal...5k, a mere 3.1 miles. Preparation? I took some Advil for my bum hip and my bum ankle and I wore my hiking boots to stabilize my ankle. That's all.
Appropriately enough, we joined a team led by a young, energetic woman who lost a limb to sarcoma. Also part of the team of about 30 were my co-worker, Erika, and her sister, who is about 33 and is fighting breast cancer.
About 35,000 people showed up early in the morning to take part in the competitive run, the non-competitive run, or the walk, which was blessed with efficient organization and perfect weather.
On our backs, we had pinned the In memory of... cards with Maura's name. Almost everyone's back had some declaration in honor of someone. Breast cancer survivors wore special shirts and caps. We walked in relative silence, my only discomfort, apart from the normal pain in hip and ankle, being the somewhat claustrophobic feeling of walking with such a huge crowd, people pressed close to me for the first mile or so, after which the distance between one small group and another opened up.
The last kilometer, spectators lines the streets clapping and cheering us on. Emotions welled up and I cried for Maura. Just before the finish line, maybe 50 yards or so, breast cancer survivors walked or ran down a designated Survivors' Path, lined in pink, with supporters, four-deep, cheering and crying. It was all quite beautiful. And powerful. I think that the 34,998 other participants felt the same.
Joel and I agreed we would participate in as many cancer walks as we could, regardless of the cancer.
Maybe create one in Huntsville to raise awareness and funds for sarcoma research?

The night before the race, we were at the book signing and able to meet Nancy Brinker, an amazingly brilliant and focused woman, who has truly given her life to the eradication of breast cancer. The second half of her book tells us of the formation of Susan G. Komen for the Cure. It could be sub-titled How to Get Something Done and serve as a textbook for entrepreneurs.

What a weekend!